About the Project

For December’s project we’re supporting Emily’s Entourage with their 5TH ANNUAL EVENING WITH EMILY’S ENTOURAGE GALA.  You can read more about last years Gala here.  Emily’s Entourage will provide comp tickets with our help for supporters who are committed to the mission and interested in attending the 2016 Evening with Emily’s Entourage Gala, but unable to afford the cost of the ticket. At Emily’s Entourage, every person is an important part of their team to cure CF. It is important to us that nobody is prohibited from attending our gala due to financial constraints. We are so excited to be able to offer this special program to cover the costs of these tickets.

As part of the project, we are thrilled at the prospect of having a collection of Gethrr volunteers and as well as Poser Photobooth Co.  The volunteers will be crucial for assisting in clean up, set up and working at the gala in a variety of capacities depending on need and their skillset and interest. They will work closely with Barbra Berley-Mellits and Dana Saewitz, their volunteer sub-committee chairs for placement, training and coordination.  In the meantime, if you’re interested in volunteering please email me at michael@flothemes.weareflo.com/gethrr.  I’ll forward your name so once all the volunteering needs are finalized you’ll receive an email.

 

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About Emily’s Entourage

Emily’s Entourage is a 501(c)3 organization that fast tracks research for new treatments and a cure for rare nonsense mutations of Cystic Fibrosis, a fatal genetic disease afflicting Emily and many others. Founded by Emily, her family and friends, Emily’s Entourage is made up of powerful, everyday people who have rallied together to raise nearly $2 million since 2011 to drive high-impact research, groundbreaking collaboration, and raise awareness around the world. Named a White House Champion of Change for Precision Medicine, Emily’s Entourage funds innovative research at top academic institutions and fosters collaboration between leading scientists, doctors, institutions and industry. It has galvanized a scientific community to focus on accelerating therapeutics and a cure for nonsense mutations of Cystic Fibrosis. Emily has donated millions of her own cells for research and is an internationally recognized speaker and patient advocate. Emily’s Entourage has been featured in CNN.com, People.com, Time.com, Yahoo Health and other local and national media outlets.

 

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About Cystic Fibrosis

Cystic Fibrosis is a fatal genetic disease that affects the lungs and digestive system. It causes build-up of thick, sticky mucus in the lungs that leads to life-threatening lung infections. There are currently 70,000 people living with Cystic Fibrosis worldwide. The projected life expectancy is 41 years, although that number is skewed upwards by those with milder forms of the disease than Emily’s.

 

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